Wednesday, March 31, 2010
Saturday, March 27, 2010
Is there an age where you stop needing your Mommy? I know as children grow, they become more independent. But even now when I'm grown with a child of my own there are times when I still want my Mom. Anytime I'm sad or sick I still wish My mom was closer. Right now my poor sweet baby is sick and all she wants is ME. She doesn't want anything more than to sit and be held by Momma, even letting me rock her in the old rocking chair. This rarely happens as active as this 4 1/2 year old is I hardly ever get to sit and hold her and rocking her gosh, almost never. So even though I am taking good care of her and giving her medicine and wishing she gets well soon, I'm taking advantage of this time where my girl just needs her mommy!
Posted by punkymama at 1:34 PM
Tuesday, March 23, 2010
Last night, Riley and I went to the funeral home for a visitation for a family friend who passed away due to cancer. As we walked in I saw a lady just gravitate towards my child. I am getting pretty bad about remembering names and faces and hoped I was not supposed to know her. She walked up and said. Your daughter is beautiful! My grandson is 19 months old and he has DS. The mom and grandbaby had just left(Bummer, I would have loved to meet them!) But I talked with the woman and her husband for quite a while. She asked about milestones, and when Riley reached them. I told her whenever I'm out and see a child who has Downs I just want to give em a big hug. They are so precious and I somehow feel like we are all connected. Like we're in an exclusive club and WE ARE THE LUCKY ONES!! I feel like we are all kindred spirits blessed with more love than we could have imagined. And though each story is different, they all share common threads. Through events like Buddy Walk, local DS groups, and even this blog, I have been blessed to meet so many wonderful families who are living each day to the fullest and loving every minute with their special children. I feel so blessed to be a part of this loving and supportive community! As we left, in typical Riley fashion, she hugged and waved and blew kisses to everyone. To her we are all the same, she doesn't see race, economic status, abilities, etc. She just sees a world of friends, and if we were all a little more like that, this world would be a better place.
Sunday, March 21, 2010
HAPPY WORLD DOWN SYNDROME DAY! Down Syndrome International (DSI) has officially earmarked 21 March as World Down Syndrome Day (WDSD). The date was chosen to signify the uniqueness of Down syndrome in the triplication (trisomy) of the 21st chromosome and is used synonymously with Down syndrome. The annual observance of WDSD aims to promote awareness and understanding of Down syndrome and related issues : and to mobilize support and recognition of the dignity, rights and well being of persons with Down syndrome.
I can't begin to count the many ways my life has been forever changed and enriched by Down Syndrome. Since 2005, when we were blessed with our precious little Riley, I have learned more, grown more, and loved more, than I ever thought possible. Everyday I am amazed by how much she makes me smile, laugh, and just how much I love her. Being Riley's mom has changed me in the greatest ways. And on today, World Down Syndrome Day, I celebrate the beautiful child Riley is and the wonderful person she will become.
Posted by punkymama at 12:34 PM
Wednesday, March 17, 2010
Tuesday, March 9, 2010
Sorry I haven't blogged in a while. Things with a 4 year old get hectic. Since I haven't posted lately I thought I'd give an update on recent events.
A few weeks ago, I was told by daycare that since she would be 5 before the deadline, Riley would start Kindergarten this August. When I tell you I was not prepared for this at all, I mean it hit me like a ton of bricks. I knew that she(and I)weren't ready for big school. I had planned on keeping her at her excellent daycare one more year, because she is testing at about a year delay, I felt this would give her some "catch up" time and lead to successful school days. After several hours of crying, and with the help of my wonderful Mom(THANK YOU SO MUCH!!)I was able to explain to the local school board, the special ed coordinator to be exact, our situation. Not only did I not feel like Riley was ready for school she is so small(she only wears 24months-2T and she'll be 5 this year). The woman explained that I did not have to enroll Riley in Kindergarten this year, that she could wait one more year to start and that because of her special needs, school district was not a determining factor because we can send her to the school we feel has the best programs for her. WHAT A RELIEF!! So in August, if she is to old for daycare, then we will be sending Riley to a preschool program at a local elementary school where Gerard's cousin is a Kindergarten teacher, then next year she will attend there and have a familiar teacher. That should help ease my anxieties about school. It is amazing how fast they grow. When Riley was born, I thought it would be forever before I was worried about school, but that day has come.
Ballerina? After 3 weeks of dance class, with no significant progress, I was facing a difficult decision. I did not want to give up on Riley, but with her not participating and spending the entire class running around, nor did I want to pay for her to run(something she can do at home for free). My mother-in-law went with us to dance and was pretty irritated that neither of the teachers engaged Riley or even tried to get her to join the group and participate. I asked for a withdrawal form and then something wonderful happened. Watching on the tv monitors(parents aren't allowed in class) I saw Riley joining the group. The head teacher decided to hold her hand and say Riley you will be my partner. The rest of the class she stood right by the teacher and participated. Even attempting the ballet positions, so I know she had been watching at least. During a bathroom break, I snuck in a told Riley how proud I was of her. The teacher said, "to be honest with you, I was scared to try to make her participate and stand by me because I didn't want to hurt her feelings, but now that I know that this is what she needs she'll be my partner. Riley really seemed to enjoy the rest of the class,I think she felt special standing up front with the teacher, and given the extra attention, she may turn out to be a prima ballerina after all.
Posted by punkymama at 11:39 AM